Knoxville Community Gathers for Walk to Defeat ALS
Knoxville is gearing up for an important event that aims to bring awareness and support for those battling amyotrophic lateral sclerosis (ALS). The Walk to Defeat ALS, which will take place on September 28 at Victor Ashe Park at 11 a.m., invites locals to come together in solidarity for a cause that affects many families across the region. This event is not just a walk; it’s a celebration of life, a remembrance of lost loved ones, and a call for action in the fight against this debilitating disease.
A Personal Journey
At the heart of this event is Carianne “Cari” Meystrik, who has played a pivotal role in establishing the Walk to Defeat ALS in Knoxville since its inception in 2010. Cari, a passionate advocate for ALS patients, has been living with the disease since her diagnosis in 1998. Although her life took a challenging turn when diagnosed, Cari made the choice to seize every moment. She refers to her efforts and those of others as a way to “do as much as you can while you can.”
The Walk is an occasion for Cari’s team, named Carianne’s Committed Cure-seeking Cavalcade, to rally together. Each year, between 60 and 80 members don bright lime green, a color that symbolizes hope and matches Cari’s power wheelchair. “People who have ALS and their families share such an instant and intimate bond. It’s almost like sacred ground,” Cari expressed, highlighting the powerful connections formed during this gathering.
Support and Community
The event serves as a platform for expressing support, sharing experiences, and offering hope. Cari’s husband, Chris Meystrik, who is also her primary caregiver, notes that it’s a way for Cari to thank those who have stood by her through her journey.
“It’s a privilege still being here,” Cari shares, while acknowledging the emotional toll of survivor’s guilt. She reflects on how others look to her for hope regarding their futures. “Every person is different,” she states, emphasizing the unpredictability of ALS. “Only God knows the number of your days,” she reminds her fellow fighters, motivating them to make the most of their lives.
Why Participation Matters
As Cari looks forward to this year’s event, she recalls that participation levels have fluctuated over the years, particularly after the success of the viral ice bucket challenge and the impact of COVID-19 on social gatherings. She is optimistic about rekindling interest and growing participation once more. The funds raised from the walk are crucial; they provide not only for essential research into finding a cure but also for immediate support for those currently battling ALS.
Cari informs us that living with ALS can cost an average of $200,000 each year, covering healthcare, equipment, and caregiver support. The financial strain on families is substantial, making community support even more vital.
Getting Involved
If you’re inspired to help, Cari encourages everyone to learn more about ALS, even if they don’t have a personal connection to the disease. “Google it,” she suggests. “Hopefully they’ll be shocked enough to wanna be involved.” Providing practical support, whether through meals or helping with household chores, can mean the world to families affected by ALS.
The Meystriks also encourage open conversations about how to help. “Call me if you need anything” often isn’t enough. Instead, offering specific help can make a bigger difference. As Chris points out, “Find a need” and drop by to lend a hand.
A Community Connection
The Meystriks host a support group for those living with ALS at their home, and they warmly welcome anyone interested in reaching out. The upcoming Walk to Defeat ALS is not just an event; it’s a community effort to bring awareness, support, and hope to those affected. You can register or find more information about the walk on the ALS Association website.
Join the Knoxville community as they unite to fight against ALS and support each other in this crucial battle. Together, they can create a brighter future for everyone impacted by this disease.
